In her Open Letter to Government published last week, Hannah Deacon spoke to the Independent's Lizzy Buchan this week about her fight.
The article includes a comment from Alex Norris, the shadow public health minister, who told The Independent: "I welcomed it when the government accepted the therapeutic use of cannabis but it's not right that getting close to two years later, many patients report that they are still unable to obtain a prescription on the NHS and families are having to pay thousands of pounds a month to private healthcare providers for treatment.
"This creates an unjust two-tier system where those who can pay get access to vital medication and those who cannot pay go without."